A Note On Sickle Cell: What is a Crisis & What can come from it.

We Help Again,

I felt the need to write this blog because of the priority I put on hospitalisation and the need for urgent care that people who have Haemoglobin S ( Sickle Cell). I was recently in a hospital visiting a Sickle Cell patient and after  having to explain it to a lovely nurse who just wanted to learn I felt the enthusiasm to write this, sometimes people just lack the experience and knowledge to deal with what’s in front of them.

Thats perfectly okay, for those that want to learn this blog is for you. I recently explained how a crisis is experienced in Living Through A Crisis  think of this as a precursor and more clinical version of what happens in the body of someone with Haemoglobin S; this is a direct note to those who want to know and are willing to learn.

What is Sickle Cell

It’s best to start with what Sickle Cell is. Sickle Cell is a hereditary mutation in the Red Blood Cell, instead of Haemoglobin being malleable and spongy, they to form rods Increasing the viscosity.

Having a knock on effect onto how much oxygen a red blood cell can carry Landing in a sticky situation in the vessels, sickle shaped blood cells collect in a singular location making it much harder for oxygen to be carried throughout the body.

Usual areas of concern are the joints but these can happen anywhere at anytime as it is usually a mutated cell that can start the domino effect.

What Can Cause a Crisis

Whereas it can happen at anytime leaving many in shock of their own body no matter what they do pain can pop out of anywhere. In fact some of my worst crisis have come from the most casual situations.

Sickle Cell can still be exacerbated by

  • high energy exercise like cardio,
  • a loss of water,
  • any sort of infection like the cold –
  • virus of any kind

as you can probably tell there are a myriad of complications from having Haemoglobin S, many medical complications get co-opted on a grand scale causing the whole diagnosis  convoluted. There is no way to measure when a crisis will hit, right now but with technology at the stage it is now there are a couple ideas I see that can cross the Threshold into sickle cell patient care.

What we know for sure is that Haemoglobin S in red blood cells transform to create sickled shaped cells blocking veins cause high levels of pain in joints and through muscles.

I find myself asking many more questions the literature isn’t as dense as it seem and these blogs are the best of the best pieces of information, just as how information breaks down the stigmas – I see medication and technology bridging the gap to better care; and till then this is what we have to go by.

Whatever Moves Your Dial

Damilare. Not Your Typical

Thank You For Reading… Please read my other Feature blogs:

A Dose of Optimism

A Portion of Humanity

Global Invisible Disease

Living Through Crisis

And visit Sickle Cell Companion  for all my other literature on Sickle Cell


I want to connect and contact people that want to know more, here’s how you can connect with me

Facebook: fb.me/nytypical

Instagram: @nytypical

Twitter: @nytypical

A Note on Sickle Cell: The Addict Stigma & Opioid Crisis ‘We are in pain not addicts’

We go again,

While in pain the fastest course of action is Painkillers from Paracetamol to stop a fever and Ibropofen to quell inflammation all the way to Opioids to numb the whole body completely from the real excruciating pain of a crisis.

With such pain it is very important it gets dealt with in haste, however Sickle Cell patients have to deal with being thought of as an addict as they have to use high caliber of drug to deal with insufferable pain. Most of these medications are not available to the general public, as a Sickle Crisis sufferer you are taught from young to stay informed and be vigilant about your medical condition so having such information can be seen as a catch 22, that being said should it really be at the cost of the sufferers?

This particular blog addresses the stigma which tells doctors that Sickle Cell patients are PainKiller addicts on top of not believing black pain as detailed in a portion of humanity — (please check out the blog as they relate heavily) they believe that Sickle Cell patients present as Opioid addicts — this causes some of the patients to have longer wait times and to be tested to ensure to the Doctor in question this patient has Sickle Cell.

These prior exams have a negative effect on patients, further research shows there is no president for Sickle Cell patients ever being addicts. A study shows patients are less likely to get addicted to painkillers due to the natural nature of the pain. All the while America is in the middle of an “Opioid Crisis” and more and more people being hooked on prescription pills like Percocet’s Oxy and Codeine all of which are exactly the pills used to handle chronic pain making it really bad new for Sickle Cell patients who have been lumped in with abusers.

A great deal of Sickle Cell patients as well as I, dislike having to rely on taking certain pain medication more often than not those sufferers who decide to hold off taking pain medication until the last moments. Pain Killers do not cure anything on the part of the patients there relieves the pressure of pain; some situations end up like my anecdotal evidence in Living Through a Crisis.

I have been looked at as an addict more times than I have actually been treated for my pain; prior to ever getting proper attention to my medical emergency, this irks especially when there is no basis scientific or factual basis of this more often than not its a ‘pseudo-analysis based on what presents as signs of addiction…’ I want to changed that.

I do believe though that opioids do not need to be the only solution, Sickle Cell Pain  is a symptom of the sickling of blood stuck in the blood vessel; the pathway is blocked so it causes irritation then further pain. That being said painkillers are used to stop feeling the pain while the Sickled blood runs its lifespan.

That being the case there must be other means to help your body stop feeling the pain or to effect the pain area directly. We can only wait for more clinical trials and better studies for how to beat treat this pain and for now it is controlled drugs. There are Studies with Cannabinoid (CBD) oils engineered to help patients suffering with

More information on the studies referenced

Mistreatment of Sickle Cell Patient

Further Reading: Research Study: Opioid crisis adds to pain of sickle cell patients

Whatever Moves Your Dial

Damilare. Not Your Typical

Thank You For Reading… Please read my other Feature blogs:

A Dose of Optimism

A Portion of Humanity

Global Invisible Disease

Living Through Crisis

And visit Sickle Cell Companion  for all my other literature on Sickle Cell


I want to connect and contact people that want to know more, here’s how you can connect with me

Facebook: fb.me/nytypical

Instagram: @nytypical

Twitter: @nytypical

 

A Thought On: Why I Started ‘A Note On Sickle Cell’

I wanted to share,

When I wrote this blog I was of the mindset that I’m pausing my life to start this crusade and campaign for better health care. Then I slapped myself in the face and looked at it for real, this is me starting my life and really being the me who I’m supposed to be.

There are people out there who are afraid to even speak about our medical condition like is some dirty little secret or an embarrassment to where they will feel shame or ridicule even speaking about it.

For me I know I’m out here and this is me being me. I am for sure 100% myself and I can’t be anyway but authentic with it. This is the real Start. March 14 I started my life came out the closet and let people know the real me not the me they perceive me to be.

Whatever Moves Your Dial

Damilare. Not Your Typical

Here is the Original blog  A dose of Optimism


To get in contact with me find me on

Facebook: fb/nytypical Instagram: @nytypical

Twitter: @nytypical

Thank You For Reading… Please read my other Sickle Cell related blogs:

A Dose of Optimism

A Portion of Humanity

Global Invisible Disease

And visit Sickle Cell Companion  for all my other literature on Sickle Cell

If you enjoyed this please check out More of Thoughts On:

For some longer form write ups Read some of My Dialogues

Click here for my Essays 

To learn more about Owning Your Own Ship – OYOS