A Note on Sickle Cell: The Addict Stigma & Opioid Crisis ‘We are in pain not addicts’

We go again,

While in pain the fastest course of action is Painkillers from Paracetamol to stop a fever and Ibropofen to quell inflammation all the way to Opioids to numb the whole body completely from the real excruciating pain of a crisis.

With such pain it is very important it gets dealt with in haste, however Sickle Cell patients have to deal with being thought of as an addict as they have to use high caliber of drug to deal with insufferable pain. Most of these medications are not available to the general public, as a Sickle Crisis sufferer you are taught from young to stay informed and be vigilant about your medical condition so having such information can be seen as a catch 22, that being said should it really be at the cost of the sufferers?

This particular blog addresses the stigma which tells doctors that Sickle Cell patients are PainKiller addicts on top of not believing black pain as detailed in a portion of humanity — (please check out the blog as they relate heavily) they believe that Sickle Cell patients present as Opioid addicts — this causes some of the patients to have longer wait times and to be tested to ensure to the Doctor in question this patient has Sickle Cell.

These prior exams have a negative effect on patients, further research shows there is no president for Sickle Cell patients ever being addicts. A study shows patients are less likely to get addicted to painkillers due to the natural nature of the pain. All the while America is in the middle of an “Opioid Crisis” and more and more people being hooked on prescription pills like Percocet’s Oxy and Codeine all of which are exactly the pills used to handle chronic pain making it really bad new for Sickle Cell patients who have been lumped in with abusers.

A great deal of Sickle Cell patients as well as I, dislike having to rely on taking certain pain medication more often than not those sufferers who decide to hold off taking pain medication until the last moments. Pain Killers do not cure anything on the part of the patients there relieves the pressure of pain; some situations end up like my anecdotal evidence in Living Through a Crisis.

I have been looked at as an addict more times than I have actually been treated for my pain; prior to ever getting proper attention to my medical emergency, this irks especially when there is no basis scientific or factual basis of this more often than not its a ‘pseudo-analysis based on what presents as signs of addiction…’ I want to changed that.

I do believe though that opioids do not need to be the only solution, Sickle Cell Pain  is a symptom of the sickling of blood stuck in the blood vessel; the pathway is blocked so it causes irritation then further pain. That being said painkillers are used to stop feeling the pain while the Sickled blood runs its lifespan.

That being the case there must be other means to help your body stop feeling the pain or to effect the pain area directly. We can only wait for more clinical trials and better studies for how to beat treat this pain and for now it is controlled drugs. There are Studies with Cannabinoid (CBD) oils engineered to help patients suffering with

More information on the studies referenced

Mistreatment of Sickle Cell Patient

Further Reading: Research Study: Opioid crisis adds to pain of sickle cell patients

Whatever Moves Your Dial

Damilare. Not Your Typical

Thank You For Reading… Please read my other Feature blogs:

A Dose of Optimism

A Portion of Humanity

Global Invisible Disease

Living Through Crisis

And visit Sickle Cell Companion  for all my other literature on Sickle Cell

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Pain Of Passion

It’s so weird to talk on a subject such as this as it hits so close to home. We all know of John Lennon, Robin Williams & Basquiat Alexander McQueen. People that moved the culture forward like  Hemingway, Francis & Zelda Fitzgerald and Kanye West most know today who are plagued with demons that come in all shapes and sizes. We could honestly name 101 artists that have their own problems they are fighting here and there. Point being what is the cost of doing something you love.

I tell myself daily from pain comes to my best work, if I’m not in a state of comfort mostly mental that thing that drives me won’t be as strong as it should be to create a great story or concept. Now I do so much for the sake of my love of the sport it is simply a thrill to create something of great worth to me, then for other people to like and accept it is a beast of its own. But how much is this state of imminent peril worth, and with notoriety comes anticipation, the anticipation of people wanting more, Can he be better; Can he top his last work; Has he stagnated; Was she just a one hit wonder.

I now can only imagine the pressure to do well then compared to now. I think we can effectively say with art comes the recreational flavours of the World. All rappers can talk about is their use of Weed, Alcohol, Extasy & Drug addled orgies now how many of them are having fun or holding in some sort of pain that they are not ready to deal with. When it comes to my life there have been absurd amounts of Pain involved from a very young age and in dealing with many mental battles to just fight on, coming to peace having nothing to do with creating. Doing what I do brings me joy but there is that part of me that always wonders what will I create if I treated my life like Earnest did, Drinking and smoking at a typewriter trying to pull from the very depths of my imagination the best stories possible. Now, being a University student I have had my fun in that uncontrollable realm but I will reiterate it had nothing to do with creating it had more to do with the Celebration of a deadline or things of that nature.

What I want to know is what does it take to create great works, or what is considered “Great” sober, because all of whom I listen to and information I consume turns to the the former “With great works, comes great demon to be fought”. Ultimately Great pain follows because demons never leave they transmute. What’s that say to a Young Turk like me, yes I’ve got my own internal demons but the path to creating a great work is seemingly laid out?  You must control that demon with external forces in order to be able to create something substantial, as if that damn is always there playing on your mind uncontrolled you’ll never be able to get out the thing you want to say comfortably, in a digestible way for your audience. This is up for philosophical debate. What is your passion worth to you?

“I won’t underestimate who I am, capable of becoming.” – Benjamin Clementine

This has been

Not Your Typical